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Patient Advocacy
 Websites presented in alphabetical order HealthInsight: Taking Charge of Health Information 
 This site features "a list of 10 questions designed to help you turn health information into clues and to get you started on becoming your own health risk detective." Part of a project "aimed at helping consumers evaluate health and scientific information." From the Center for Risk Analysis, Harvard School of Public Health. http://www.americanchemistry.com/s_chlorine/sec_content.asp?CID=1232&DID=4680&CTYPEID=113 Topics: Health Last updated May 24, 2009 Institute for Healthcare Improvement (IHI)
This organization works toward health care "improvement by building the will for change, cultivating promising concepts for improving patient care, and helping health care systems put those ideas into action." Features material (including white papers) on topics such as chronic conditions, developing countries, office practices, patient safety, reducing mortality, and other topics. Also includes material about program and campaigns such as the "Improvement Map" tool. http://www.ihi.org/ihi Topics: Health Last updated Jun 22, 2009 KaiserEDU.org
This website is "designed to provide students, faculty and others interested in learning about health policy easy access to the latest data, research, analysis, and developments in health policy." Browse tutorials, reference libraries, and issue modules, and by topics such as women's health, minority health, and the uninsured. From the Kaiser Family Foundation. http://www.kaiseredu.org Topics: Health Last updated Sep 10, 2008 Patient Advocacy Resources: A Guide for Patients and Their Families
"Created to assist consumers in becoming advocates for their own health." Includes books and an annotated list of websites on topics such as medical records, rights and privacy, informed consent, disabilities, and end of life decisions. "Quick Guides" give practical tips on how to talk to your doctor, when to seek a second opinion, and other concerns. Guide covers Connecticut as well as national resources. From the University of Connecticut Health Center, http://library.uchc.edu/departm/hnet/advocacy.html Topics: Constitutional Law & Civil Liberties, Consumer Research & Advocacy, Disabilities, Health, Librarianship Last updated Jul 26, 2005 Patient Advocate Foundation
Helps patients resolve disputes with insurers, employers, health care providers, and creditors. The National Financial Resources Guidebook for Patients is searchable by state and category of help. Provides scholarships for those who have had life threatening diseases interrupt their education. http://www.patientadvocate.org/ Topics: Health, Health Last updated Dec 16, 2000 Patient Privacy Rights
This organization is "dedicated to ensuring Americans control access to their health records" and that "what you say in the doctor's office should stay in the doctor's office." Includes material about the Health Insurance Portability and Accountability Act of 1996 (HIPAA) and other legislation on patient privacy, information about electronic health records, links to news and studies, suggestions for consumer advocacy, and related material. This organization was founded by a doctor in 2004. http://www.patientprivacyrights.org/ Topics: Constitutional Law & Civil Liberties, Health Last updated Jun 22, 2009 Ways You Can Help Your Family Prevent Medical Errors!
Illustrated, easy-to-understand suggestions for preventing medical errors such as getting the wrong medicine, taking the wrong amount of medicine, getting sick from staying in the hospital, and doctors operating on the wrong part of the body. Includes links to related fact sheets and other resources on medical errors and patient safety. Also available in Spanish. From the Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services. http://www.ahrq.gov/consumer/5tipseng/5tips.htm Topics: Consumer Research & Advocacy, Health Last updated Dec 3, 2007 |
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