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Librarians' Internet Index - Websites You Can Trust

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Paralysis

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 Websites presented in alphabetical order

ALS Association view detail comment email this

Official site of the ALS (Amyotrophic Lateral Sclerosis) Association, more commonly known as Lou Gehrig's disease. "ALS is a neurodegenerative disease that usually attacks both upper and lower motor neurons and causes degeneration throughout the brain and spinal cord." Features medical news and research updates about the disease and information about clinical trials. Contains a section for healthcare professionals and another section for patients, families, and caregivers.
http://www.ALSA.org/
Topics: Diseases & Conditions

Last updated Jun 17, 2008


Guillain-Barre Syndrome (GBS) and Influenza Vaccine view detail comment email this

Questions and answers about the relationship between GBS ("a rare neurological disease characterized by loss of reflexes and temporary paralysis usually beginning in the lower extremities [legs] and moving to the upper extremities [arms]") and annual flu vaccines. Site notes that "reports of GBS after the administration of vaccines are ... rare." From the Centers for Disease Control and Prevention (CDC).
http://www.cdc.gov/nip/vacsafe/concerns/GBS/default.htm
Topics: Diseases & Conditions, Infectious Diseases, Medical Treatments & Devices, Public Health & Safety

Last updated Aug 8, 2005


Guillain-Barre Syndrome Fact Sheet view detail comment email this

"Guillain-Barré (ghee-yan bah-ray) syndrome is a disorder in which the body's immune system attacks part of the peripheral nervous system," resulting in muscle weakness and potentially paralysis. Includes discussion of causes, diagnosis, treatment, and research topics. From the National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH).
http://www.ninds.nih.gov/disorders/gbs/detail_gbs.htm
Topics: Diseases & Conditions, Infectious Diseases

Last updated May 17, 2005


MEDLINEplus: Guillain-Barre Syndrome view detail comment email this

This site provides news and extensive information on this disorder, also called acute idiopathic polyneuritis , that consists of weakness and even paralysis of many of the body's muscles, along with abnormal sensations.
http://www.nlm.nih.gov/medlineplus/guillainbarresyndrome.html
Topics: Diseases & Conditions

Last updated Jun 19, 2004


Moebius Syndrome Foundation view detail comment email this

Bringing together information from and links to medical and lay support for those affected by Moebius syndrome, a genetic flaw that affects cranial nerves and often accompanied by other anatomical birth defects (e.g., partial or deformed limbs, inability to eat any but soft foods), this resource is international in scope. Links vary in their sophistication, and include support and advice for those living with a condition sometimes called "Life without a smile" (because the nerves and muscles necessary to create that facial expression are missing). Particularly useful is the link to Tom Voorheis' page of practical support moebius1.org .
http://www.moebiussyndrome.com/
Topics: Diseases & Conditions

Last updated Apr 23, 2003


Paralysis Resource Center view detail comment email this

The mission of this website is "to provide a comprehensive, national source of information for people living with paralysis and their caregivers to promote health, foster involvement in the community, and improve quality of life." It includes information and links on research, active living, rehabilitation, tools and technology, travel, and understanding state, federal, and other assistance programs. From the Christopher " Dana Reeve Foundation.
http://www.christopherreeve.org/
Topics: Disabilities, Diseases & Conditions, Senior Health

Last updated Mar 11, 2009


Polio Eradication view detail comment email this

News, background information, and other resources relating to the eradication of this paralysis-causing infectious disease "caused by a virus ... [that] can strike at any age, but affects mainly children under three." Includes fact sheets, vaccine information, polio status data, and strategic documents and status reports on efforts to eliminate polio in countries such as Nigeria and Afghanistan. From the Global Polio Eradication Initiative, a joint effort of groups including the World Health Organization (WHO).
http://www.polioeradication.org/
Topics: Diseases & Conditions, Infectious Diseases, Medical Treatments & Devices

Last updated Sep 7, 2004




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